Category Archives: CGMS

Piercing Has, Tubing Death

Two of my top searches here. Rather odd if you ask me, but whatever floats your boat.

I have been wanting to blog for a while now, but I just haven’t created the time for it. I’m not entirely sure what I’d like to say. Over the last few weeks I’ve been contemplating what this blog is…it’s not a health blog, it’s not a sports blog, it’s a me blog…not that I know exactly what that means.

I guess on the topic of piercings, I’ll go with my year in retrospect and hopes for the next.

I turned 25 on March 12th, officially definitely mid-twenties, officially uncareered, unindependantly housed, uneducated…all those good things lol.

24th Year

March – I think I had my last three wisdom teeth out in March. Did I have my nose pierced at 23 or 24? Went to Southern CA. Met George (yay DOC meetups). Hung out with Liz…haven’t seen her since. :( Hospital visit #1 of the year. Embarrassing birthday celebration. Discovered the world’s best medication…Ondansetron ODT – AMAZING anti-nausea med.

April – Visited my grandma in AZ, hadn’t seen her in nearly a year. Finally got my side tattoo, it’s a pine tree. It took about four hours…SO painful, my others were not…ribs hurt! Moved to Idaho. Hospital visit #2, after my first day on the job, walked 3mi (I think) to the hospital at 1-2A and stayed two full days.

May – Played with axes and crosscut saws. Got my WFR certification. Played in the snow. Started working toward the end of the month. Started my, I think, third round of antibiotics since April.

June – Worked in the forest!!!! First anesthesia experience, first surgery, lost my tonsils. Also lost my nipple piercings – I had to take out all my piercings for the surgery and was too sore and distracted to put my nipple piercings back in. My dad visited me in Idaho to drive me to and from the hospital and a couple days of recovery. I think I watched/bought more movies, watched more TV series during recovery than I had in a year! I called my mother in tears more than once in pain.

July – Tonsil wound got infected…more antibiotics, more pain medication. Worked in the sun daily…in a chair. Worked on environmental non-profit stuff (a ton of fun). After the pain subsided a bit, I started taking forest/river walks in hopes of re-joining the field. Had a brief Grave’s disease scare. Congratulated on my diabetes management (I miss my MT endo)…(actually I miss most of this stuff, not glad it happened, but I miss it anyway…making me tear up…stupid emotions lol) Brief scare about blood in my urine. Tonsils were cleared. By this point I was WAY out of shape…being sick sucks.

August – Almost ready to join the field…only to get sick. Final trip to the hospital…as an admitted patient. Surprise problem, that would require specialists. Could go to Hamilton, MT for at least one of the specialists…3.5hours away. None of the tests for “wilderness” illnesses came back positive, so their best guesses were Crohn’s (winner, winner lobster dinner…if I liked lobster). UC, or maybe celiac. Realized it was time to call it a day…boss & I decided it was best I go back to CA; I wasn’t working and was going to need to be running more tests and seeing more doctors…it just made sense to be in CA. Parents drove up with my dog to help move me back. Visited Janelle (!!!!) and my aunt and uncle in Ogden, UT. Was heartbroken.

September – Doctor visits, feeling and being sick, trying to go to school, occasionally working for my dad’s work, sleeping, sweatpant wearing…overall not handling everything very well.

October – Official Crohn’s diagnosis (yay?), was happy to have answers. Start the adventure of finding the right medication regime. Got a CGM…LOVE my Dexom! Finish working for my dad, his company merged at the end of the month. More feeling crappy. Sleeping, trying to work, trying to go to school, etc.

November – Drop out of school (medical reasons). Attempt at the SCD diet…didn’t go well…used too much almond flour. More feeling sick, sleeping, etc. Looking for a job. Highlighted my hair. Thanksgiving meal planning…was awkward.

December – 2weeks after I highlighted my hair I dyed it dark, dark brown with some red highlights. Christmas. My mother started paying me to leave the house. She also had a stroke. Family paid me to stay home from vacation…sounds worse than it was: I wasn’t going to go so they paid me to watch the dogs. To be honest, I don’t really know what else happened.

January – Thought about returning to beauty school, but that didn’t work out (like so much else over the last year it seems lol). Started school again. Kind of got the medication regime figured out. Had an at least 5 trip root canal/tooth pulling, I don’t recommend that either. Felt really good about things getting better…and me getting better.

February – Made it just over 6months without a trip to the hospital…turns out I had kidney stones. Surgery #2 for the year…and for my life. Peed blood, peed blue and finally peed normal again. Had a stint put in (while under anesthesia) and pulled out (while awake)…I don’t recommend getting one of those. Recovery sucked. It hurt to move, pee, walk…anything. Got a job!!!! The surgery happened my second week of work and I had to take a whole week off. Thankfully they were really nice about it. Fell behind in school. My sister got a dog…a 10month old Husky, Kaya…I’m now her nanny.

March – My mother and sister threw me a surprise party, that I demanded not be a surprise. It takes a lot of planning to prevent me from getting sick. School graciously allowed me to drop my classes without Ws again, due to the surgery. (WAY annoying…it could be a whole post all on its own)

So, not many tattoos or piercings. I’d like to get my nipples re-pierced, but when I have more money and can come up with a good time to have them pierced. I’d like another tattoo or two, but I can’t exactly figure out what I want…and I also need more money before that becomes a good idea.

I was really hoping 2011 would be hospital visit free. Maybe I can just hope for a hospital visit free 25th year.

I’d like to be able to stay in school long enough to actually finish something. I’d like to move out…I have doubts that’ll happen by the time I’m 26 (a little sad :-/), but I’d like to be kind of close to that happening. I’d like to feel normal more days than I feel sick. I’d like to be productive, I’d like to feel like I’m getting somewhere.

I don’t know, I don’t think I want anything too complicated. If I could have my health and life back, I’d be okay with the rest of the shit life throws my way. Maybe I wouldn’t be okay immediately, but I’d get there.

Not having my health at 25 makes me feel all sorts of ways. Angry, sad, hurt, disappointed…maybe I’ll post about it soon.

But, really, Year 25, please grant me a year of health.


S-A-T-U-R-U-R-DAY NIGHT

Except it’s Sunday night. Mike Myers was on SNL this week (on Saturday night – see it’s sorta relevant). My favorite Mike Myers movie is So I Married An Axe Murderer, which has this song. So, it’s not entirely random.

It’s become apparent to me how much I’m stressing over this coming week and month. If I take every appointment as it comes and each day it comes, I’m fine. Seeing doctor appointments set Monday, Tuesday, next Tuesday and the Tuesday following AND the dentist this Monday too.

The dentist I’m not too stressed about.

My endo – I’m terrified. I know I have an endo complex, but I haven’t been this worked up for a while. My first and second endos were intimidating, one made me cry and the other told me they wouldn’t help me if I didn’t log my sugars. I should have logged my sugars, but I’m stubborn…and I’ve never been good at it. My endo in Montana was wonderful, I loved him. He was respectful and willing to help, but didn’t force things on me. I got a new endo when I moved back to California. He has been good. My first appointment he gave me Symlin and a Dexcom for a week. My second appointment he told me I was the most compliant patient he had and did amazing on prednisone. The day before that appointment was an amazing day, had one low and didn’t go any higher than 160 or something. Today, the day before this appointment, I’ve been 42, 140, 70, 160, 55, 275, 48, 300, 220, 270, 240 and now holding steady around 310. I have no way to explain it. It was just an off day of extreme zigzags. Until late in the evening it was just a lot of over-corrections in both directions. Now, I KNOW I’ve over-corrected, but I’m not budging. I have 15U in my system and I’m still not dropping. I swear, once I’m out of range it’s hell getting back. If I’m too low I really can’t function, if I’m too high I’m a big grumpyface prone to bitchiness. I feel like I need to be able to explain myself. I just don’t know how or why it really happens. It would make sense that this stupid ibuprofen is wreaking havoc on things, so maybe that’s it. Who knows if he’ll believe it though, he won’t believe me that Entocort EC is a steroid.

Tuesday I’m seeing my PCP. I’m happy to go there…except that it’s at 9:15a, but still happy to go. I can get my bloodwork done there. Also, I need to ask her about my shaking hands. It’s been really odd, I get really shaky hands. Not when I’m low, not when I’m high, just during the day. It’s slightly concerning. I really like my doctor. She’s nice to talk to about not just diabetes, not just Crohn’s, not just neuropathy…just about me.

I also have my second interview at the dog daycare/boarding facility on Tuesday. If I am hired I will most likely start this week. It’ll be nice to have a purpose for getting out and nice to be around dogs all days. Dogs are easier to be around than people…or at least they are for me. I’m a little nervous of handling school and 20hrs of work a week. It sounds lame, I know…but I really am so limited in what I can do. I get worn out SO easily. I hate being so limited, but it’s reality for me right now. Hopefully it’ll be great, not too much stress, fun and a good fit.

Next Tuesday I see my gastroenterologist. I already wrote about that appointment. I think they’ll be calling me tomorrow. We played phone tag about my dentist’s desire to put me on an anti-inflammatory medication. If they pull my tooth tomorrow, we’ll probably have to talk about what I can take for that too. It’s not worth it and probably not justified, but I feel like it’s my fault things aren’t going better with Crohn’s stuff. Or maybe that I’m not feeling what I’m feeling. Weird, I know…it’s just WHY can’t I get it together?!

The following Tuesday is my neurologist appointment. We need to talk about my muscle spasms and my shaky hands. He and I have only seen each other once and it wasn’t for very long. He doesn’t seem too interested in figuring out why I have neuropathy, but he seems to think I do in both hands and feet.

Eventually I need to see the eye doctor. But, I want to wait until I have a job so I can pay for at least something.

The one positive and even a little bittersweet part about all these appointments is that I can transfer over to my insurance’s mail order pharmacy. It just saves so much money. I LOVE my CVS in Castro Valley. I really don’t want to leave. But when you have meds that are $10, $25 and $40 every month and the mail order pharmacy charges the same for a three month prescription, you just can’t justify it. To make myself feel a little better I tell myself that I can still fill my temporary prescriptions at MY CVS…I’ve been on four or five already this year. I might have withdrawals if I don’t get to see them.

Another, oddly entertaining and somewhat pathetic event happened this weekend. My mother told me it’s been heavy on her heart I need a social life. Yes, a social life…as in getting out of the house. So she intends on occasionally donating $10 to my social life fund. Having no job and no money does play a part in my staying home so often…why leave to pay for gas, pay for wherever I’m going and whatever I’m doing? I can use the internet at home. While doing homework and studying outside the house would be nice…it’s cheaper to stay home. But, getting out will allow me to have some space from our already strained balance in the house. …Plus, I wore a short sleeve shirt today and I seriously need to get some sun!

Well, I started this on Sunday night, it’s now close to 1A on Monday…whoops.

I’ve added another reading assignment to myself…Last Child in the Woods. My roommate in ID had the book and I’d meant to read it but never got around to it. He told me about it and it sounded incredible. THEN my sister had to read the book for one of her classes in the Fall. She gave it to me tonight. Yay :)

One last thing…I’ve added another shower injury to last week. I bruised my toe REALLY badly, it’s black & blue and hard to walk, as I was getting out of the shower. I hit it on the door track. I’ve used this shower off and on since 1998…you’d think I could manage to use it and not injure myself.


Kiss My Country A$$

There’s really no point to this title, other than I really like the song.

I’ve been sitting at my computer for a good 2-3 hours trying to figure out what to type. Since my last post I’ve had a lot happen that I’ve wanted to post. Sadly I should have written when it was on my mind, as I’ve now forgotten.

Thankfully I’ve got something… Continue reading


As Much As It Hurts

It’s reality.

Sometimes I really get on myself for being so dang depressing in my posts all the time. BUT, I post how I feel and I post what’s going on. And honesty is more important than pretending to be okay. Plus, who would really believe me if I said I was totally fine with losing my job over health, having two seemingly unconnected nerve issues in my extremities and an abundance of autoimmune issues? Come on, you can’t be 100% okay with that!

It’s not like I don’t accept the situation. I do. But it means I take one day at a time and some days are worse than others. And I try. I try to do normal things. And I try to be patient when I can’t do what I want because I feel to horrible.

So, today I’m participating in my first diabetes walk. It’s not with JDRF or ADA, it’s with Dogs4Diabetics. I’ve mentioned them before, they’re an incredible organization. They provide dogs for diabetics, who will alert you when you’re low, dropping and often times when you’re skyrocketing. Before I left for ID I was waiting to have my home visit. Sadly, I wasn’t patient enough and they called to schedule the visit my first week in Idaho. I emailed them last week in hopes of re-starting the application process again (for the THIRD time!). They haven’t gotten back to me, but they’ve been working on this walk. Plus I’m still sorting some things (like umm, what the heck is wrong with me) out with the move. But, eventually, I hope I have one of these awesome dogs. When I visited the facility for the first time and was alerted on at 70 it brought tears to my eyes. It was absolutely incredible!

And one day soon, when my friend isn’t working doubles, I’ll go drink a beer and play pool. And I’ll spend time with my sister. And I’ll get a job (which is a whole other topic). I hope that little by little as I engage in more normal activities I start to feel more like myself. I’m afraid it’ll have to be little by little though, I can’t dive right in…and if you know me I’m the diving type. I still don’t have a good handle on what things trigger me feeling so ill.

Last night I learned, 3 bites in, a pastrami sandwich with cream cheese, avocado and lettuce on a dutch crunch roll was a trigger and something I should avoid. When I was in the hospital a couple weeks ago I was talking to the nurse about how normal poop and all things stomach related are and how ridiculous it was that it’s not something to be discussed in public. So, I apologize if I gross anyone out…I promise you, it’s no less gross for me to experience it! But when I eat something that triggers, I HAVE to be near a bathroom for a good couple hours after I eat the food. Between the diarrhea and the burping up the food it’s a disaster. I think I’m in for a lesson on patience with myself. Because sometimes I’m just not going to be able to do what I want when I want. I’m trying to be fine with the idea and I know it’ll get easier once the doctors and I know what the hell is happening and why. So until then, I’ll work on this whole patience idea. I hope I’m in the clear this morning for the walk though…that would be B A D!

Happy Saturday everyone!


Saturday, You Sucked. Monday, You Rocked…ish

Well, Friday night I decided I wanted cake. Problem #1 with this cake idea is that cake is unhealthy. Problem #2 with the cake idea is that my sugars have taken a sidekick as of late, his name is shitty…shitty sugars. Knowing full well the VAST amount of fat in chocolate cheesecake, I took my insulin 20 mins before eating, with the second portion of insulin coming in an hour. I didn’t verify my carb count prior to eating the cheesecake, figured I’d take a guess and adjust when I got home. I ate my half a piece, put it in the fridge and felt like death. Continue reading


All In The Family: Freunde und Familien

So, on World Diabetes Day I asked my sister to write about what my diabetes meant to her. She actually read the post and tried to look up diabetes info. (Some of the stuff she said she learned didn’t make any sense…but I don’t know everything and it’s sweet she’s trying to learn)

I have something written about my father, but I’m not sure when I’ll be ready to publicly post that. What if I ask a question and don’t get an answer? Meh. Maybe later this week, after a few revisions.

My family is pretty complicated, but rather entertaining – usually only if you’re not involved though. AND my best friend, Liz, has been my family on more than one occasion and helped me see the entertainment value in my family many many times. Continue reading


Adventures In Hypoglycemia

First off let me start by saying, my insurance is a pain in the ass. I mentioned yesterday the “requirements” I must meet to upgrade my pump and get a CGM. I COULD try to get a CGM and just wait until my pump decides to die on its own. BUT, that would mean wearing two “pump-like” devices all the time. HECK NO, I have zero interest in doing that.

So, tonight I had a low at work…after being at 260-280 for almost three hours! I couldn’t get it down. I’d like to know what the hell the insulin was doing if it wasn’t lowering my sugars…. I guess it was just procrastinating in working because I ended up at 67. Well, 67 doesn’t cut it for my insurance. My 4-5 monthly “hypoglycemic” episodes must be below 50. So, I spent THREE damn hours low waiting for it to drop low “enough.” Enough, enough, enough…that’s just dumb. Anyway, I ended up at 41. Sadly I hadn’t eaten since 3pm and it was 1:30am, so I was pretty hungry. I’m nearly certain I messed up taking the insulin and will either be incredibly high or incredibly low. I kind of would like to stay awake to figure it out because I don’t like waking up high OR low. We’ll see it’s almost 4am already. Continue reading


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