Category Archives: hypoglycemia

A Good Day

Been feeling like they’re few and far between these days.

Oddly, Tuesday was a good day. Nothing spectacular happened, I didn’t do anything particularly exciting or important.

I got lost in Danville, not really I just forgot where I was going so I guessed and guessed wrong. Then I placed something in my head, only to see my head was wrong and reality was a bit different. However, the actual intended destination was near where I thought it had been.

My oral surgeon had to pull out a stitch that wasn’t healing…hurt like a…I don’t know what, but it hurt.

Stent is still annoying the crap out of me. ALWAYS feel like I have to pee! And there started to be more blood today:( Today I get it out though! Can I tell you how NOT excited I am about the procedure?!?! It’s big and goes from my kidney, through my ureter to my bladder. I will be AWAKE while he puts the hook in to pull it out! But I am glad it’ll be gone.

Had class, am WAY behind and it’s going to take a lot of work to catch up with all my classwork.

At work we mop up the dog pee, if they’re inside. It’s Pine-Sol and water. After my shift I have to clean the pee bucket and refill it for the next shift. I splashed it all over my arm, hair, shirt and jeans. DOG PEE! ON my face!!! I was able to change the shirt after work, but didn’t have time to shower or find another pair of jeans and I’m 99.99999% certain I smelled a lot like a dog in class. After class, around 10:30 I was finally able to get in the shower.

Dogs are dirty, I know…and frankly really don’t care. We only wear work/casual clothes…jeans & old t-shirts/sweatshirts. But I can, without a doubt in my mind, tell you getting pee/pine-sol/water/dog hair splashed all over myself is not terribly enjoyable…funny, yes…gross, definitely. I think I may have wigged out if it got in my mouth, but so long as it stays out of me I’m good.

Monday night I was talking with Jess about forgetting diabetes stuff, I KNEW I would need to refill my pump at work Tuesday morning. I TOTALLY forgot my insulin! Thankfully it ran out towards the end of my shift and was able to go straight home, but waking to 312, dropping to around 90 at work and then popping right up to 344 was a bit exhausting.

Perhaps it was a good day because I was productive and actually tired. It’s a great feeling to be not only mentally in need of refreshment but physical too. There are so few opportunities for our society to be active in the workplace. Yeah, I hang out with dirty, slobbery, LOUD dogs all day…but I’m moving around, playing, cleaning. It’s not like I’m making a major (or any) contribution to society, but I’m making the dogs have a better day. Dogs are rarely as rude as people can be, they’re always grateful of your attention, they’re forgiving…and they take your mind off all the shit going on in the “real” world.

It’s hard to imagine anyone wanting to be a friend: I’m flaky and have to cancel last minute more times than I’d like, there’s CONSTANTLY something not right, hospital staff and pharmacies know me, I take meds that can mess with my ability to be completely with it, exhausted should be my middle name, eating out is beyond difficult, there’s always some conflict with my health and my family…I am starting to be more okay with this reality.
It’s my life, I can deal with it (most days)…but it’s really hard to “deal” with anybody else’s stuff too. I don’t say it to be selfish, honestly, just as a friend I’d like to be there for a friend as much as they are for me. Some days, that’s not a possibility. On the other side is that my life comes with a bunch of crap, most people have enough to deal with without me contributing anymore. I don’t mean petty drama or anything, but as a friend you care for your friends…when they’re having a hard time you want to be able to listen. A few friends understand and I love them for it. But there are others who get mad when I have to cancel, get pushed out of shape when I don’t respond quick enough, treat me like porcelain or think my limitations are just made up. If only they knew how much my limitations piss me off, I LOVE having a million things going on, tight schedules daily, etc but it’s just not me anymore. It’s okay I’m not, but it’d be nice to have other people on board, not to mention the poor responses make me feel worse about not being as capable.

Well that was a long rant in attempt to say, dogs don’t care what crap you have going on, they always like you. At one point on Tuesday I had 2 dogs on my lap, one between my feet, and two on each side trying to beat out the other for my attention. I definitely get tired of cleaning up poop and pee, breaking up rowdy dogs and hearing the deafening barking of some dogs…however, it can be incredibly therapeutic. It’s almost always chaotic, but a soothing chaos. Crazyness.

I’d love to have more good days, less sick ones. I think I cherish my good days more than I used to, it’s nice to feel like not such a disaster.


Take What You Can Get

I started a post on Feb 11th and never finished. It had a great title and everything: “The Dog Days are Over”. It was wrong, I think they’d only just begun.

February 11th I had two new pieces of information: (1) I was surprised with a new dog for my sister. A 10 month old Husky. Her name is Kaya and she’s every bit a puppy. (2) I FINALLY got a job! I was hired the same day we got the dog…and my new job is working with dogs. My official title is “Dog Handler” – I play with dogs, keep them well-behaved and end any fights. With the little dogs I end up cleaning poop, mopping pee my whole shift and with whatever time is left, I pet them. With the large dogs, I keep them from killing each other…not really, they just rile each other up and it’s my job to keep them settled…somewhat. They’re allowed to play, however, a lot of the dogs are right around Kaya’s age and get too excited. By the end of the three hours all the dogs are exhausted and most are stretched out on the floor.

So, there was going to be a whole blog about that…but now there’s more…

Did I mention my root canal finished? It failed. The tooth was pulled. I now have a lopsided mouth. It still bleeds from time to time, but the surgeon thinks it looks good so it’s not a problem.

Last Friday I made my first visit of the year to the ER. Thursday night around 9pm I started feeling pain in my right abdomen. By 11p I thought I was dying…perhaps a bit melodramatic, but I was in a LOT of pain. I tried going to the bathroom, but couldn’t and it didn’t really feel like Crohn’s pain, but I thought maybe. Then I tried a shower, didn’t work at all. Tried a heating pad, no luck there either. Finally I took some pain medication…which I don’t like to do because it tends to mess everything up with my Crohn’s. Then I was afraid to go to sleep because I didn’t want the pain medication to wear off and wake up in such searing pain. I had thought my doctor’s office opened at 7am so I planned to call then, turned out they opened at 8:30a, so I called the on-call doctor at 6:45a. She recommended I go to the ER, she felt it may be Crohn’s related and waiting to see the doctor, ordering the CT, getting the CT and seeing the results would take too long and it was a Friday after all.

So I told my parents where I was going and went on my merry way. There were three of us in the waiting room, I was the third…though I was called in first. (A bonus of having diabetes). The ER doctor felt I may need my appendix removed so he ordered a CT to find out. I survived my very first enema and did “well”…whatever that means. Turns out my appendix is just fine, for now. However, I had a number of kidney stones. They gave me more IV pain meds and sent me on my way. After a short spat with my mother regarding my ride home, I called my PCP’s office and asked for a referral to a Urologist. Then there was another short spat and a trip to the pharmacy…and then another pharmacy because no one carries PercoTAN anymore. My mother dropped me off at home with the THREE dogs and she and my sister left for the day.

Before they left Kaya of course got out because my sister needed to say goodbye to her 5 times and standing on the other side of the gate was unacceptable. Kaya then sprinted around the neighborhood. She finally came back and she was put in her crate. She screamed, cried and yelped…while I was trying to get the urologist to fit me in that afternoon.

I still couldn’t drive, my dad was coming home from work but was still an hour away and I had a friend I’d just canceled on…so I called her. The urologist could only fit me in if I could make it there by 2pm…which was 40mins away. I walked a half a mile down the street…in the pouring rain, met my friend on the corner, she dropped me off at the appointment and my dad met me there. Before leaving for the appointment my tooth started bleeding again. As my friend was driving I called the oral surgeon…he wanted to see me too. So I told him I could meet him at 3pm and explained the ER/doctor situation in a very abbreviated form.

Urologist showed me my CT, I had two large kidney stones and about 10 others in the right kidney and one in the left. He informed me I had a choice to have surgery done or not, but since I was at a higher risk of infection and already have inflammatory issues it was possible I’d need emergency surgery done. If I scheduled the surgery I could avoid another ER visit. …with my luck I thought it best to schedule the surgery. If I passed the stones over the weekend I could call Monday to cancel, otherwise Tuesday was the surgery.

Tuesday came, I had a morning appointment with my neurologist. That was lovely. I have another medication and “condition” or maybe he said “syndrome” but he told me it wasn’t technically a disease…essential tremors. The new med is Propranolol, a beta-blocker. Yay, just what I wanted! Another medication and another “condition”…I think I’ve had enough, thanks though.

Writing about this is depressing…I’ll be 25 in 13 days. It’s not time for my annual “yearly rundown”…but I’ve now had surgery, 2 in fact, am on more meds than I can usually remember, have three chronic conditions and two progressive conditions…2 more than I had last year….more doctor’s visits, more sleep, less life…I’ll shut up now…

So after the Neurologist appointment I went home, grabbed a few things and left for the hospital. I checked in at Noon, my surgery started around 3:30 and I left the hospital around 6:20p. My dad then took me to CVS to get the new medications and then we went home.

I’ve since spent the week peeing blood. I now know what it’s like to have an aching kidney. They put a stent in to prevent it swelling shut…thus the achy kidney. The pain lasted through Saturday. The pain medication has now screwed with Crohn’s and I’m in that kind of pain now…which pain meds will only make worse.

There is a med that is causing me to be really anxious before bed…I’m hoping it’s the pain meds and that’ll go away now that I’m not on them anymore. I’ve finished the antibiotic and the stop bleeding med…but didn’t take the flomax. I can’t really explain why, I think I’m just tired of having weird issues and weird medications and didn’t want to take a med intended for aging men with prostate issues. It’s a dumb excuse, but I think we all have a tipping point, and that was mine.

As a result of the hospital stay I now have three nasty bruises from the attempts at locating a vein for my IV. My sugars have gone batshit crazy…so it’s not just Crohn’s acting up. At least Crohn’s had the decency to wait til the surgery pain had subsided. We can’t always live in a perfect world, gotta take what you can get.


S-A-T-U-R-U-R-DAY NIGHT

Except it’s Sunday night. Mike Myers was on SNL this week (on Saturday night – see it’s sorta relevant). My favorite Mike Myers movie is So I Married An Axe Murderer, which has this song. So, it’s not entirely random.

It’s become apparent to me how much I’m stressing over this coming week and month. If I take every appointment as it comes and each day it comes, I’m fine. Seeing doctor appointments set Monday, Tuesday, next Tuesday and the Tuesday following AND the dentist this Monday too.

The dentist I’m not too stressed about.

My endo – I’m terrified. I know I have an endo complex, but I haven’t been this worked up for a while. My first and second endos were intimidating, one made me cry and the other told me they wouldn’t help me if I didn’t log my sugars. I should have logged my sugars, but I’m stubborn…and I’ve never been good at it. My endo in Montana was wonderful, I loved him. He was respectful and willing to help, but didn’t force things on me. I got a new endo when I moved back to California. He has been good. My first appointment he gave me Symlin and a Dexcom for a week. My second appointment he told me I was the most compliant patient he had and did amazing on prednisone. The day before that appointment was an amazing day, had one low and didn’t go any higher than 160 or something. Today, the day before this appointment, I’ve been 42, 140, 70, 160, 55, 275, 48, 300, 220, 270, 240 and now holding steady around 310. I have no way to explain it. It was just an off day of extreme zigzags. Until late in the evening it was just a lot of over-corrections in both directions. Now, I KNOW I’ve over-corrected, but I’m not budging. I have 15U in my system and I’m still not dropping. I swear, once I’m out of range it’s hell getting back. If I’m too low I really can’t function, if I’m too high I’m a big grumpyface prone to bitchiness. I feel like I need to be able to explain myself. I just don’t know how or why it really happens. It would make sense that this stupid ibuprofen is wreaking havoc on things, so maybe that’s it. Who knows if he’ll believe it though, he won’t believe me that Entocort EC is a steroid.

Tuesday I’m seeing my PCP. I’m happy to go there…except that it’s at 9:15a, but still happy to go. I can get my bloodwork done there. Also, I need to ask her about my shaking hands. It’s been really odd, I get really shaky hands. Not when I’m low, not when I’m high, just during the day. It’s slightly concerning. I really like my doctor. She’s nice to talk to about not just diabetes, not just Crohn’s, not just neuropathy…just about me.

I also have my second interview at the dog daycare/boarding facility on Tuesday. If I am hired I will most likely start this week. It’ll be nice to have a purpose for getting out and nice to be around dogs all days. Dogs are easier to be around than people…or at least they are for me. I’m a little nervous of handling school and 20hrs of work a week. It sounds lame, I know…but I really am so limited in what I can do. I get worn out SO easily. I hate being so limited, but it’s reality for me right now. Hopefully it’ll be great, not too much stress, fun and a good fit.

Next Tuesday I see my gastroenterologist. I already wrote about that appointment. I think they’ll be calling me tomorrow. We played phone tag about my dentist’s desire to put me on an anti-inflammatory medication. If they pull my tooth tomorrow, we’ll probably have to talk about what I can take for that too. It’s not worth it and probably not justified, but I feel like it’s my fault things aren’t going better with Crohn’s stuff. Or maybe that I’m not feeling what I’m feeling. Weird, I know…it’s just WHY can’t I get it together?!

The following Tuesday is my neurologist appointment. We need to talk about my muscle spasms and my shaky hands. He and I have only seen each other once and it wasn’t for very long. He doesn’t seem too interested in figuring out why I have neuropathy, but he seems to think I do in both hands and feet.

Eventually I need to see the eye doctor. But, I want to wait until I have a job so I can pay for at least something.

The one positive and even a little bittersweet part about all these appointments is that I can transfer over to my insurance’s mail order pharmacy. It just saves so much money. I LOVE my CVS in Castro Valley. I really don’t want to leave. But when you have meds that are $10, $25 and $40 every month and the mail order pharmacy charges the same for a three month prescription, you just can’t justify it. To make myself feel a little better I tell myself that I can still fill my temporary prescriptions at MY CVS…I’ve been on four or five already this year. I might have withdrawals if I don’t get to see them.

Another, oddly entertaining and somewhat pathetic event happened this weekend. My mother told me it’s been heavy on her heart I need a social life. Yes, a social life…as in getting out of the house. So she intends on occasionally donating $10 to my social life fund. Having no job and no money does play a part in my staying home so often…why leave to pay for gas, pay for wherever I’m going and whatever I’m doing? I can use the internet at home. While doing homework and studying outside the house would be nice…it’s cheaper to stay home. But, getting out will allow me to have some space from our already strained balance in the house. …Plus, I wore a short sleeve shirt today and I seriously need to get some sun!

Well, I started this on Sunday night, it’s now close to 1A on Monday…whoops.

I’ve added another reading assignment to myself…Last Child in the Woods. My roommate in ID had the book and I’d meant to read it but never got around to it. He told me about it and it sounded incredible. THEN my sister had to read the book for one of her classes in the Fall. She gave it to me tonight. Yay :)

One last thing…I’ve added another shower injury to last week. I bruised my toe REALLY badly, it’s black & blue and hard to walk, as I was getting out of the shower. I hit it on the door track. I’ve used this shower off and on since 1998…you’d think I could manage to use it and not injure myself.


Diabetes is a big fat liar

After you’re diagnosed with type 1 diabetes, medication has a whole new definition in your life.

Insulin is not an optional medication. It’s optional if you consider death an option, and I don’t.

As a kid our doctor (on the rare event we went to one) would write scripts, my mother would tell the doctor she’d fill them, never fill them and not return to the doctor until the law required it. Type 1 isn’t that lenient.

I see my doctors as often as they’d like to see me, or as close as possible. And I diligently take my medications as directed. I think at last count I was on 11 or 12 meds. When you’re on that many drugs your options are limited for additions, there’s a likelihood some meds will counteract others.

I haven’t had a paycheck since the end of October. The government is paying my tuition. My family is helping me with the rest. Diabetes and Crohn’s are expensive and require constant attention. Knowing money was tight for my parents I opted to take two of my medications twice a day instead of the prescribed 4 times.

My thought process was that I can cut those, at least I’m still getting some of the medication. Insulin is not an option. Metformin I have some backstock. Welbutrin, I’m not messing w/ my antidepressant usage. Imuran, it’s been the most helpful and I only take it once a day. Entocort EC…I’m almost out of that too. Nortriptyline, I’ve had BAD experiences weaning on and off my nerve meds so I didn’t want to do that & there’s no way to take a half dose. I can’t think of the rest but Pentasa and Dicyclomine got the cut. I am supposed to take 2 pills four times a day of Pentasa and one four times a day of Dicyclomine. I can live without that, right?

Well, I’m alive. But between my mouth, clusterfuck of sugars right now and the reemergence of severe cramps and nausea I’m not alive very happily.

And I know it’s not their fault for the timing, but with the stupid CWD forum from yesterday (and today? I’m not sure) I feel inadequate. It’s me, it’s not them. I’m allowing myself to feel this way. But, I feel like I’m saying “poor me” and I really don’t mean to. Everyone’s life is different and everyone has different shit they have to deal with. I don’t have a great family network to be able to vent and express, so here it is. It may not be the smartest idea to divulge so much information of how I “feel”…in person that’s the last thing I talk about. I prefer fact.

…which pisses me off more, I don’t like all this feeling crap. Feeling sick, feeling damaged, feeling useless, feeling behind, feel, feel, feel. I’d prefer to not feel, thank you very much. It’d be really nice to NOT feel like I’m a failure at trying to figure out my dumbass digestive system, how and when it digests and metabolizes what and knowing what my sugars do and are supposed to do. Why can other people figure it out and I can’t?

Off the feelings topic and now to why diabetes is a liar:

Diabetes tells you it’s the most important, it’s first. You MUST take your diabetes meds over any others.

Crohn’s meds are just as important. If your digestive system decides not to work your insulin regime is going to be all over the place. Sometimes the carbs peak at a “normal” time, some postponed…without any real regularity…unless you count a different story at every meal as regular.

Diabetes may be a big pain in the ass, but don’t let it fool you into thinking it’s more of a pain in the ass than certain other diseases, in my case Crohn’s.

Sometimes Crohn’s has to win…ex: my pain med options
Diabetes gets to win other times…ex: eliminating some pain med options b/c I NEED to use my dexcom and refusing to add ANOTHER steroid to the regime. There’s no way in hell I’m taking two steroids at once again…all the help the steroids do goes to shit if I can’t keep my sugars fairly moderated b/c it makes my stomach cramp with EVERY damn food.

Diabetes, you’re a big pain and I hate you. I hate you for the kids with T1, for the people trying to be a responsible and “normal” adult, for the parents who have the kids with T1.

Despite diabetes being an attention whore, I’m kind of scared to go to my GI on the 15th. It’s an earlier than originally planned appointment and I can’t see my regular PA. She said I need to meet with the doctor because she honestly doesn’t know what to do anymore. So, awesome, that’s encouraging. What the hell am I supposed to do with that? ..aside from being scared.

And I’ll shut up right now, or I’ll just add more profanities.


Do You Paint Your Toes ‘Cause You Bite Your Nails?

I love this song. I loved it more when I paid attention to the lyrics; b/c I totally do that. I also paint my toes because I feel like I have perpetually wet nails when I have my fingernails painted.

On to slightly more interesting topics…

I’m in my last 24 hours of a three-part root canal. Two Thursdays ago I went to my new dentist. This is gross, sorry: in late 2007 I developed a nasty puss filled blister on my upper gum. I was told pulling my wisdom teeth would resolve the problem, so I started the process of getting those out. Then I changed insurance. In August/September 2009 I was in so much pain I needed my upper wisdom tooth removed immediately. They started me on antibiotics and pulled the tooth. All was supposed to be well. March 2010 I had another tooth infection and needed another wisdom tooth pulled; I opted to pull the remaining three. My dentist thought I may (keyword: MAY) need a root canal in the tooth in front of my initially removed wisdom tooth eventually (another keyword: EVENTUALLY). In the mean time, I needed a deep root cleaning. So, I used the remainder of my dental insurance and had the deep root cleaning done. April-August 2010 I was in Idaho. When I came back and had seen my GI, Endo & PCP I looked into getting my tooth fixed. November 2010: hello change of insurance, followed by holiday madness. January 2011, here we are. My new insurance approved dentist referred me to an endontist and I got an appointment for the next day, two Fridays ago. They take pictures of my teeth and tell me they can’t start the root canal yet, I have to be on penicillin first. She could start the procedure Monday. So, Friday I started the antibiotic and came in Monday morning. It took at least an hour to numb the correct area of my mouth and they started drilling. My doctor then told me I have an “interesting” tooth. JUST what I wanted to hear. She told me my tooth was black inside, they needed to TRY and save the tooth, they’ll pack it with antibiotics and give me a temporary filling. If they cannot save the tooth I will fall into one of two categories: the tooth will need to be removed or I will need oral surgery of some sort. The waiting time for the antibiotics is a week, so tomorrow, the hope is, I will complete the root canal from hell. Continue reading


Draw Me A Map

Literally, that would be nice. But it’s my new song title titled post. Dierks Bentley…you can’t help but love his music.

Unless you’re my grandmother and uncle. My uncle just doesn’t like country…ask my grandmother if she likes it and she’ll lecture you on how it’s not even music, except the guitars. The guitar playing is music. I learned all this on Thanksgiving.

Wouldn’t it be great if life would give you a map for what you’re supposed to do and when and where you’re headed? I guess that’s the beauty of life though. If we knew what was happening when our brains would go to slush. Every once in a while I’d like a little enlightenment on where I’m headed though.

Going into today I had two legitimate job prospects. I now have one. I am really hoping I don’t bank on this one position and then lose the little bit of hope and motivation I still harbor if it doesn’t come to fruition. Which means, I need to obtain more job prospects.

If someone would like to assure me that I’m not the only one like this, it would be great: I am fantastic at looking for positions and creating a list of where I’d like to apply. However, I am not so great at actually applying.

I have issues counting on other people to help me out with everything going on over the last few months…more like over half a year. Mainly, my parents. I don’t like having to depend on them for pretty much everything. It’s the situation right now though, so I’m sucking it up and appreciating their assistance.

I guess I could use that as a motivator?

Anyhow, I’ve been pretty poor at posting anything lately. I’m tired of talking about the medical crap, health nonsense and overall rather challenging state my life seems to be experiencing. But, to be honest I really have nothing else going on. No money to do anything or go anywhere. I’m cleaning out stuff. My parents purchased a Wii for Thanksgiving. Apparently we do Thanksgiving gifts now. :) I’ve watched a lot of NCIS on USA and of course Law & Order SVU.

My blood sugars hate me and have taken the new pattern of going completely apeshit at random times of day and never two days in a row. I’m not really appreciating it. On Wednesday I had an interview and then went to Ikea for a bookcase, in between I ate lunch. On the way to Ikea, right after lunch, for which I took TWO units for a large deli sandwich on a dutch crunch roll, I dropped below 40. I started lunch at 150-160. I ate some Peanut M&Ms, because that was all I had in the car (I wasn’t driving, I promise). That didn’t help. Finally I stopped my pump. So for the first 30mins or so I had a pump beeping every 25mins reminding me that I had suspended the basal. THEN I had all sorts of double arrow up reminders. The one consistent issue with my blood sugars is that it takes forever to come up and forever to come down. If I can manage to stay below 150 and above 90 it’s a good day. Most days there’s at least one low or one high, all of which can take up to 3 hours to return to range. Three hours is a really long time to have a low…and a really long time to stay high. …I’d like a map for that too.

Aside from needing WAY more sleep than I’d like, Crohn’s stuff has sort of settled. Granted, I have only been eating once, MAYBE twice a day. Fruit and yogurt do NOT turn out well. It’s rather unfortunate, because that’s really what I’d like to eat. Instead it’s usually a bowl of healthy cereal with milk. Tonight was NOT good. My mom and sister wanted to go out…to Red Robin. I’d already had my cereal hours beforehand, but I figured I go anyway. Red Robin’s meal probably totaled more calories than I’ve consumed on Monday, Tuesday and Thursday combined and probably all day on Wednesday. It also contained much more grease than I’ve consumed in I don’t know how long. Needless to say, my body did not appreciate the indulgence. It was a bad choice because of all the fried food and because it was so much more than I’ve been consuming. If I have too big of a meal it makes me nauseous. So, I guess it’s not great, but it’s also pretty consistent, which I appreciate.

I would like some consistency in my life. I need to get myself on some form of a schedule. There is too much randomness for me to handle right now. It gets my head spinning…and then I get WAY too far ahead of myself, get stressed out and eventually I just shut off all forms of thinking.

When I have a built bookshelf, I will share. I am excited to have it up and books on it :) I have too many books and not nearly enough space. They currently stay in boxes, on a high shelf close to my ceiling, above my dresser and span across two shelves that spread the width of my closet. The bookcase has 6 or 7 shelves and will hopefully support my book addiction. …surprisingly I’ve been slacking in the reading area. I finished the last half of a book on Monday. I’ve yet to start another. It would be nice to finish Water For Elephants.

In spirit of the title I’ve given this incredibly random post, perhaps I’ll try to sort some things out and create a bit more structure and “map” out some kind of a daily schedule. Reading, Knitting, Cleaning, Job Looking, Being a Responsible Patient Who Takes Her Meds On Schedule, Waking Up, Hiking/Walking. You know, so I actually accomplish something in my 24 hours each day. Yay for working on a map. :) …or attempting it.


Go Away

Thursday was a weird day. I got up and Crohn’s wasn’t being a jerk and diabetes wasn’t misbehaving much either. But the biggest accomplishment of my day was putting away a few groceries, only the ones that needed to be refrigerated.

One might assume my lack of actually doing anything was due to depression. (The third D in my life) And I wouldn’t say you are completely off base. I’m also fairly certain I’m catching a cold, I have all the signs: sugars running low, stuffy on one side of my face, HORRIBLY itchy throat (wasn’t my tonsil removal surgery this Summer supposed to take care of that?), constant need to sneeze, major headaches and more I can’t quite remember right now. I can’t say I feel sad about anything…I’m a little angry that my body hates me so much it wants to give me a cold. It’s not like I don’t feel crappy every day, getting sick just makes things worse and more complicated.

I skipped an interview. It’s not as bad as it seems, I promise. I got a call Wednesday from the gym I used to work at, but a different location. They called to tell me they were having open interviews Thursday from 12-5p. I looked at the clock a bit before 12 and didn’t want to go right away, then when I thought about it again it was 4:45p. Maybe I got so excited about the idea of a “real” job that I didn’t want to go back. But at this point, a job is a job which gives me a paycheck. I also think that feeling off from this impending cold has made me a little apathetic.

Apathy is a big pain in the ass. I guess part of it is apathy, but I think I have a lot of, maybe, anger? A friend told me last week I deserved a break, for something to go right. And, I don’t know, I don’t feel like anything is going right. I’m overwhelmed. Most days I need a nap my 1p. Most days I’m in too much pain to want to do anything else. Or I’m up all night in the bathroom (or afternoon or morning, but mostly night). I almost feel bullied. Not by anyone else, but by my own body. And being bullied by your body is constant. It’s not like when you’re a kid in grade school where another teases you at recess. It’s all day, day in and day out. And it’s exhausting. It makes me feel like I can’t do anything. School is falling apart because I’m not going, because I feel to sick to go. I don’t have time to deal with my jerk of a body and life. Pharmacy, appointments, meds 4x/day, sickness…it’s a full-time job. My doctor told me my fatigue was normal with the amount of “things going on” in my body and life. But how am I supposed to handle the fatigue AND be able to do everything a productive quasi-adult is supposed to do? There’s too much on my plate and I don’t even have anything on it.

This post kind of sucks. But it’s November and it’s Diabetes, IBD and Manatee Awareness month, so I figured I should probably write something. If you made it this far in the post, thanks..and sorry, haha.

My PCP called…they actually want to re-check my urine before the 3 months is up and it has to be first thing in the morning urine. I told them I’ll pick it up today. I don’t know if I should be worried or not. I think I probably am worried, but not actively. Just in the back of my mind, like the tethering concern. I’m pretty sure that’s due to my plate being to full too. There’s no room for more worry.

I’d really like to just have the time and ability to have a life. I don’t need a full social calendar, just the ability to have a social calendar. I just want a break. I know diabetes and Crohn’s are here for the long haul, but they need to stop being so rowdy and bothersome. And my immune system needs to get its head on straight and stop attacking itself and attack the stupid cold germs I have contracted.

Hopefully tomorrow I’ll have something more positive to say…or at least less cloudy, perhaps even sunny. Oh crap, it’s supposed to be recipe day. Guess you’ll get one on Saturday instead. And hey, there’s nothing negative about yummy food. :)


Maybe I’m Weird

When I was diagnosed with T1 I had been showing symptoms for a few months prior, but came up with explanations from “I’ve been trying to drink more water, now I’m used to it, that’s why I’m thirsty.” to even “God is trying to teach me something”. Unlike most of my childhood though, I had had bloodwork done as close as maybe 4 months before diagnosis. Wouldn’t that have shown if there was something wrong? Regardless of that though, I was HORRIBLY ill the couple weeks up to August 4, 2004. So sick I could hardly walk or stand or even sleep and I STILL didn’t go to the doctor. The only reason I even went to the hospital was because I was unconscious!

Now that I have another diagnosis on my hands, Crohn’s Disease, I feel like it’s the same thing. I went to the hospital August 5/6 because I was terrified. My sugars were below 50, I couldn’t get them to come up, I was absolutely exhausted (worried I was too tired to be able to babysit any longer), anything I ate either came up or out almost immediately and I just didn’t know what to do. Had I been in CA when this had happened, I’m not sure I would have taken the trip to the hospital. Being that I lived so far from any type of medical care I thought it was best to head in, after I spoke with the ER nurse over the phone. I was afraid of some diabetic hell occurring NOT that I had some other medical problem. They’re the ones who asked for a stool sample and then told me there was something wrong with it. It was news to me. Yeah, I had had some gas/discomfort/nausea/getting sick/visiting the hospital/going in between constipation and diarrhea for maybe the last year. Nothing too big or irritating. And I came up with explanations for all of it. Over the weekend my mother asked me if I’d had symptoms before going to Idaho. I said that I supposed so, she countered with “Then why did you go?” Continue reading


Faster Than The Speed Of Light

Okay, that’s lightening…but still, I can’t believe how quickly I’m trying to pull together a move! I can’t even begin to tell how crazy this week has been. The last 3 days have felt like at least two weeks. I’m dead serious. I can’t believe it.

Everything is packed except what I plan to wear and use on the drive home. It’s crazy. I booked stays at three different hotels…in two different states. The Postal Service will now start forwarding all my mail. I have doctor and class appointments in California for next week. It’s moving so quickly.

My family can’t decide who is coming, who is staying in California and where we’re staying in Ogden, UT. It may be my father coming out. It may be my mother. It may be my mother, father and dog, Rawley. We still have no timing figured out for meeting on Saturday morning/afternoon. The inability to commit to a plan is driving me crazy. I don’t think I’d care all that greatly if I weren’t the one trying to take care of their accommodations and work on getting things set on this side. Continue reading


Here We Are Again

The hospital seems to be my home away from home as of late. Total bummer, let me tell you! This hospital visit (or vacation as I’ve started calling it) isn’t related to anything else I’ve struggled with medically; not only this Summer, but ever! No kidding. I’ve had food poisoning once – the artichoke dip at BJ’s, yeasrs ago. Now, the doctors aren’t 100% sure what I have, since all ‘gut’ tests have a 48 hour + turn around period. The likely suspects are salmonella, giardia, yersinia, colitis and celiac disease.

They’ve opted to treat me for salmonella, giardia and yersinia, since the treatments are the same. So I’m on 2 antibiotics, in hopes of that working. To rule out the possibility of the other two I’m doing a celiac screening of some sort and they are recommending I have a colonoscopy. On Monday I’ll call my doctor and schedule an appointment to discuss scheduling the colonoscopy…I know you’re all so jealous.

How did this all happen? Well, I woke up on Wednesday with diarrhea. Which wasn’t in and of itself too random, the last 6 months have been a rollercoaster of constipation and diarrhea episodes. (Sorry if this is WAY tmi). Then Thursday I woke up super stiff and not feeling great. I blamed Cymbalta (as I have been for all my crappyness the last 2 weeks). Since I was feeling so down, I opted to join my boss on her trip to town. We left around Noon from home and had some lunch by 4P. (The lunches were completely different and made different places). By the time we got home, around 6P, I was feeling REALLY nauseous. I emailed a lady not committing to Friday morning’s meeting in Salmon (aka ‘town’).  It was about buildings in riparian areas (needless to say, I did not attend). By 8P I was eating dry bread and trying saltines. I also couldn’t get my sugars above 68. Then around 9P I started puking. When it got to be 1A, and my sugars STILL weren’t in normal range, I called my boss. No answer. I finally worked up the energy to walk up to her house. She wasn’t there. I sat on her porch for a bit, then went home. I called the office, because I wasn’t sure I could walk down there. About 5 minutes after 2 calls and a voicemail left my boss showed up at my door. I told her I thought I needed to go to the hospital. She got her stuff together, we were on the road by 2A, 2 hous later, at 4A, we got to Steele Memorial Medical Center.

Initially, they thougt I had the stomac flu and were concerned about my body going into DKA. Despite being 58 when leaving home, I was 260 upon arrival. Before leaving home I had shut off my pump though. The 260 continued climbing until last night, when it finally normalized. Though this afternoon I’m back up to 257. Boo! It’s been slowly climbing all day. Now – as you know – they’re not sure. I haven’t anything to trigger this whole situation. They just asked me if I’ve been in airports recently – also, no. 

I really think there’s no winning in my little world right now. Seriously! One thing after another. All unrelated (throat, infections, this, etc). What the heck?!?! 

Anyway, here we are again, in the hospital. This time with a shower, diet 7up, clean gown, new sheets & watching CMT.

Happy Saturday Everyone!I'm a Fall Risk


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