Category Archives: updayte

Nashville

I’ve been there once.

I spent a week there in June. It was a great, drama-free week…until my last 9hrs. Then someone hit my rental car in a parking lot and didn’t leave a note. A kind stranger did, though it lacked some essential information, but it was MUCH appreciated. I also found the situation at about 3am. Yes, that’s THREE in the morning. I didn’t sleep at all, missed my flight, got delayed 3hrs on the next flight, missed my connecting flight and got back to CA approx 9hrs after the original plan. …it was quite a day. A nice farmer almost made me cry when he gave me a free peach at the farmer’s market…I don’t normally cry, it was due to my over-exhaustion. However, I was incredibly grateful and touched.

In spite of my limited knowledge and experience in Nashville, it’s becoming my new home.

Yep, home.

That’s huge for me. I haven’t felt at “home” anywhere since I was a kid. 16 years ago kind of kid. I had a “home” 11 years ago, but I wasn’t there very long. I feel like I’ve always been in transition. Now, I have a home.

Or at least that’s the plan. Looking at experience, plans are a bad idea…in my case. But I’m moving forward with faith and hope this is THE plan. The plan that’s going to be…finally.

I feel like it’s pretty solid since I have very few plans for this “plan”.

Things have kind of fallen together.

Very fast.

Very, very fast.

In June I was in Nashville for work. I had gotten a new job, a REAL job. I haven’t had a decent, full-time, grown-up job in 6 years. Craziness!

Back on topic: While in Nashville for work, I inquired about what the process may be to relocate to the TN office. It was kind of a far away dream, a “maybe someday” thing.

They advised me to speak to a couple people in the SF office. And, it’s about time I grew a pair, so I gathered the braveness I could, and asked. The first answer was “Yeah, definitely, that’d be great! Who knows when though, maybe a month, maybe a year.”

Woah, woah, woah! I laughed when I was told a month.

A couple weeks went by and there was no mention of timing or a plan. So I brought it up again, with a more direct supervisor. Who was on board and we came up with the plan of December/January.

Quick, but not too quick.

…a week later they came to me and said they’d like me to move in September. Ideally the first week, the second week would be fine, but definitely by the third.

Say what?!

I asked for a couple days to think about it, look at my finances, etc. They agreed, and cautioned me that time was of the essence.

Two days later, I agreed.

The week after getting back from Nashville I bought a car. So, I now have something reliable to move across the country in. I’ve gotten roommates. I’m in the process of getting a mattress. I’ll be starting work the day after Labor Day…in Nashville.

Could this finally be my move out of California?! I’ve waited so long for this. SO long.

I’m excited: this will be an awesome adventure, I’ll finally be able to start my life, I’ll be somewhere I WANT to be, it means my family and I will be on better terms (I hope), it’s a new season in my life.

I’m scared: every time I’ve left CA or tried to leave CA something falls apart (diabetes, getting disowned, Crohn’s, tonsils), I’ll be 2200mi away from where I grew up, I’ll be on my own.

I’m nervous. I’m happy.

Hopefully, life agrees with the plan. You know what they say about plans and God laughing…it’s the story of my life. Though, I feel like while I’ve been working really hard to get everything set up, I haven’t been doing much planning. Maybe planning isn’t the word, I haven’t been doing much to force the plan. I decided what I wanted to do, felt out the waters, dove in and it’s all coming together.

Moyer and I will be beginning our lives in Tennessee.

It’s really strange for me to think of him in Tennessee. He’s spent all three years of his life in California and now I’m taking him to Tennessee. I wonder if he’ll forget CA. Or if he’ll like TN. Or if I’ve babied him too much and he’s a weird dog in TN. (I realize these are very strange concerns to have, he’s a dog) But what if people laugh at him when he needs a coat to go out in the rain, because he refuses otherwise? Or what if I’m a weirdo for loving him as much as I do? I hope he doesn’t get too homesick. He’ll probably never come back to CA or see my sister’s dog or who knows if my family will ever come out to TN, so he may never see them again either…it’s just weird. I hope he’ll be happy in TN. I’ll be there, and he’s pretty happy when he’s with me, so it would make sense for him to be happy.

One thing’s for sure, life’s an adventure.

I’m glad I’m getting to embrace it. :)Image


On Hold

I’ve been on hold for almost 30mins now & have run out of Twitter updates and Facebook statuses to read. After a moment of pondering, blogging was the obvious next course of action!

Life has felt like it was kind of on hold for a while…by a while I really mean the last two years. Right now is a really exciting, albeit scary, time for me. It’s mostly little things, but it’s still pretty awesome!

I’m in a toothsmithing program and loving it! What is toothsmithing?, you ask…it’s making teeth. Dentures, crowns, bridges, implants: the whole shebang! It’s the perfect combination of art and science. It’s also the first time I’ve been a full-time student in 8yrs…totally scary!! But I got my first two tests back today and both were 100% A’s! I think I maybe can do this whole student thing!!

I started teaching swim lessons last week. As a kid, when I was learning to swim, I remember wanting to one day teach kids to swim. It’s kind of a weird early memory I suppose, being that I was about four at the time. Now with diabetes though, holy moly, it’s scary. But I’m determined to prove I can do it!

Why is swim teaching such a big deal with diabetes? Lots of reasons! I’m in the water for 5hrs at a time with kids depending on my ability to help them and keep them safe. My insulin pump is waterproof (thank you Animas!!!) which is incredibly helpful. Dexcom is not…meaning my ability to monitor my blood sugars during that fairly active time period of 5hrs is pretty challenging. Testing on a meter is also hard, since my fingers turn to raisins and my hands are covered in chlorinated water. BUT, thus far I’ve made it work and am determined to keep making it work. Gatorade has become ny new best friend and watching what I eat before teaching has become a much bigger deal. It’s exciting and scary; which means it’s totally awesome!

Yeah, I’m still on hold…lame!

I’m also taking this hour long hips, thighs & ab class this semester and it kicks my butt! And makes it hard not to be paranoid. I’m a control freak and exercise makes my blood sugars anything but stable. So far things are going well, which is great! Even better, things have been going well even without wearing my dexcom!

Like I said, it’s nothing too big or amazing, but it’s awesome anyway.

At this point I kind of want to hang up…but I’ve already invested all this time…and mobile battery.

This Summer has been pretty trying on my emotional sanity. And I’ve managed to keep things mostly in control diabetes & Crohn’s-wise. Minor issues yes, but overall pretty okay. I’m hoping the catalyst for my issue has been removed & I will try to be smarter with my relational choices from here on out.

I’ll be headed to Montana for a few days in 2 and a half weeks. I’m totally stoked! I’ve missed the West so, so much.

Life is exciting right now…and pretty “boring.” It’s a totally new concept for me. Usually life is not so pleasantly exciting and I’m being pulled in a million directions. But now it’s exciting and normal; I have a routine & it’s working!

Before I go…because let’s face it, blogging from a smartphone is a pain & makes your fingers tired…I’d like to point out how I started with my life being on hold & I’m writing while on hold…pretty clever, right? Hopefully I’ll be ending with no longer physically being on hold, since my life isn’t really anymore.

One can always hope, right?

…I think so, since I had on tattooed on my wrist and all…


Wow

My life has changed a lot since mid-May.

June 5th I got my new dog, Moyer. I love him to death. He’s adorable…and huge. Think Clifford the Big Red Dog, but black and an actual life size. Standing on his back two legs he’s taller than my 5’7″ sister.

I go to church again and am loving it. It was time, and I am grateful for grace.

I no longer have three jobs. I have one, full-time job. Moyer gets to come with me to work every day and it’s relatively close to home.

It’s been since late May since I was in the hospital.

I’ve now been diagnosed with Crohn’s for a year. It was a rough, rough year. Adding school, work, church & a social life into my routine hasn’t been easy. Almost two weeks ago now I saw my GI…I cried after. He put me back on flagyl, cipro & entocort. I felt like I was taking so many steps forward, only to take three steps back.  It didn’t help you could see the terror in his eyes when he found out I lose my insurance in March.

With the new meds and the Crohn’s acting up, my sugars have been all sorts of everywhere. It’s really quite annoying.

Toward the end of September I cut all my hair off. Not a buzz cut or anything, but my mother called it “butch”. Then toward the end of October I dyed it brown. I love it. It’s liberating.

Navigating a social life shouldn’t be such a challenge for a 25 y/o. But, between feeling completely un-cool and terribly socially awkward I don’t feel terribly comfortable socially. I love people…which is why I work with them, but at the end of the day I like my peace and quiet. Humans are social by nature though, so I feel it’s best to maintain some form of a social life…well first I need to start one. I’m not great at it, and usually feel quite weird and out of place, but I am trying. That sounds potentially very lame, I think I’m okay with that though. Between diabetes, Crohn’s, work, family, church, school and my own sanity, being social unfortunately doesn’t always rank high on my priority list after a long day or week.

Aside from hoping to become more comfortable socially, I’d really like to be able to eat again soon. By that I mean eat an entire meal and not feel like digging a 10ft hole to bury myself in within the hour. Currently, I can handle, barely, half a meal MAYBE twice a day. I eat so I can take my meds, otherwise I get even MORE sick. :( It’s really very annoying.

Also, I’d like to take a class on social implications, expectations and perceptions…apparently I’m not great at them.

That’s kind of a 6month wrap up. It’s more a “late on a Saturday night and my head has a million things going on and something needed to be spit out” wrap up. Let’s pretend I was trying to be more diligent with my blog and give an update though :)


Piercing Has, Tubing Death

Two of my top searches here. Rather odd if you ask me, but whatever floats your boat.

I have been wanting to blog for a while now, but I just haven’t created the time for it. I’m not entirely sure what I’d like to say. Over the last few weeks I’ve been contemplating what this blog is…it’s not a health blog, it’s not a sports blog, it’s a me blog…not that I know exactly what that means.

I guess on the topic of piercings, I’ll go with my year in retrospect and hopes for the next.

I turned 25 on March 12th, officially definitely mid-twenties, officially uncareered, unindependantly housed, uneducated…all those good things lol.

24th Year

March – I think I had my last three wisdom teeth out in March. Did I have my nose pierced at 23 or 24? Went to Southern CA. Met George (yay DOC meetups). Hung out with Liz…haven’t seen her since. :( Hospital visit #1 of the year. Embarrassing birthday celebration. Discovered the world’s best medication…Ondansetron ODT – AMAZING anti-nausea med.

April – Visited my grandma in AZ, hadn’t seen her in nearly a year. Finally got my side tattoo, it’s a pine tree. It took about four hours…SO painful, my others were not…ribs hurt! Moved to Idaho. Hospital visit #2, after my first day on the job, walked 3mi (I think) to the hospital at 1-2A and stayed two full days.

May – Played with axes and crosscut saws. Got my WFR certification. Played in the snow. Started working toward the end of the month. Started my, I think, third round of antibiotics since April.

June – Worked in the forest!!!! First anesthesia experience, first surgery, lost my tonsils. Also lost my nipple piercings – I had to take out all my piercings for the surgery and was too sore and distracted to put my nipple piercings back in. My dad visited me in Idaho to drive me to and from the hospital and a couple days of recovery. I think I watched/bought more movies, watched more TV series during recovery than I had in a year! I called my mother in tears more than once in pain.

July – Tonsil wound got infected…more antibiotics, more pain medication. Worked in the sun daily…in a chair. Worked on environmental non-profit stuff (a ton of fun). After the pain subsided a bit, I started taking forest/river walks in hopes of re-joining the field. Had a brief Grave’s disease scare. Congratulated on my diabetes management (I miss my MT endo)…(actually I miss most of this stuff, not glad it happened, but I miss it anyway…making me tear up…stupid emotions lol) Brief scare about blood in my urine. Tonsils were cleared. By this point I was WAY out of shape…being sick sucks.

August – Almost ready to join the field…only to get sick. Final trip to the hospital…as an admitted patient. Surprise problem, that would require specialists. Could go to Hamilton, MT for at least one of the specialists…3.5hours away. None of the tests for “wilderness” illnesses came back positive, so their best guesses were Crohn’s (winner, winner lobster dinner…if I liked lobster). UC, or maybe celiac. Realized it was time to call it a day…boss & I decided it was best I go back to CA; I wasn’t working and was going to need to be running more tests and seeing more doctors…it just made sense to be in CA. Parents drove up with my dog to help move me back. Visited Janelle (!!!!) and my aunt and uncle in Ogden, UT. Was heartbroken.

September – Doctor visits, feeling and being sick, trying to go to school, occasionally working for my dad’s work, sleeping, sweatpant wearing…overall not handling everything very well.

October – Official Crohn’s diagnosis (yay?), was happy to have answers. Start the adventure of finding the right medication regime. Got a CGM…LOVE my Dexom! Finish working for my dad, his company merged at the end of the month. More feeling crappy. Sleeping, trying to work, trying to go to school, etc.

November – Drop out of school (medical reasons). Attempt at the SCD diet…didn’t go well…used too much almond flour. More feeling sick, sleeping, etc. Looking for a job. Highlighted my hair. Thanksgiving meal planning…was awkward.

December – 2weeks after I highlighted my hair I dyed it dark, dark brown with some red highlights. Christmas. My mother started paying me to leave the house. She also had a stroke. Family paid me to stay home from vacation…sounds worse than it was: I wasn’t going to go so they paid me to watch the dogs. To be honest, I don’t really know what else happened.

January – Thought about returning to beauty school, but that didn’t work out (like so much else over the last year it seems lol). Started school again. Kind of got the medication regime figured out. Had an at least 5 trip root canal/tooth pulling, I don’t recommend that either. Felt really good about things getting better…and me getting better.

February – Made it just over 6months without a trip to the hospital…turns out I had kidney stones. Surgery #2 for the year…and for my life. Peed blood, peed blue and finally peed normal again. Had a stint put in (while under anesthesia) and pulled out (while awake)…I don’t recommend getting one of those. Recovery sucked. It hurt to move, pee, walk…anything. Got a job!!!! The surgery happened my second week of work and I had to take a whole week off. Thankfully they were really nice about it. Fell behind in school. My sister got a dog…a 10month old Husky, Kaya…I’m now her nanny.

March – My mother and sister threw me a surprise party, that I demanded not be a surprise. It takes a lot of planning to prevent me from getting sick. School graciously allowed me to drop my classes without Ws again, due to the surgery. (WAY annoying…it could be a whole post all on its own)

So, not many tattoos or piercings. I’d like to get my nipples re-pierced, but when I have more money and can come up with a good time to have them pierced. I’d like another tattoo or two, but I can’t exactly figure out what I want…and I also need more money before that becomes a good idea.

I was really hoping 2011 would be hospital visit free. Maybe I can just hope for a hospital visit free 25th year.

I’d like to be able to stay in school long enough to actually finish something. I’d like to move out…I have doubts that’ll happen by the time I’m 26 (a little sad :-/), but I’d like to be kind of close to that happening. I’d like to feel normal more days than I feel sick. I’d like to be productive, I’d like to feel like I’m getting somewhere.

I don’t know, I don’t think I want anything too complicated. If I could have my health and life back, I’d be okay with the rest of the shit life throws my way. Maybe I wouldn’t be okay immediately, but I’d get there.

Not having my health at 25 makes me feel all sorts of ways. Angry, sad, hurt, disappointed…maybe I’ll post about it soon.

But, really, Year 25, please grant me a year of health.


MIA…again

Feel like there has been so much going on the last couple months. I am working in less than 9 hours, so instead of write it all out I thought I’d post some pictures :) Who doesn’t like pictures!?

She's so lovely after we finish at work, also...she looks like a squirrel.

Whoops! The torn out site debacle from the D-Meetup w Jess & A (talk about an embarrassing time to happen!)

She's my favorite when she sleeps...so peaceful...and not eating things.

It's usually best to take walks in the rain with rain gear on, maybe I'll remember next time

First regular season Sharks game in a LOOONG time...at least five years.

Got decent discounted seats...AND they won...in a shootout, but a win's a win!

Took my sister with me :) Dinner and a Sharks game...can't get much better than that.

How adorable is she?!?! Her name is Tori, she was boarding at work...love her!

Rocky and Rocky...also from work.

Another Sharks game! Same ticket price...WAY better seats :)

Such good seats! AND I had decent seat neighbors, they knew about the sport! (not too typical here in SJ, sorry if that's offensive)

We won again :) 3-2 Started a bit slow & couple rough PPs...but we fought hard & came away with it.

Ignore the mess and lack of makeup...but my hair has faded SO much! (have been noticing the last few days lol)

And that’s the recap. Could say more…and I will eventually when I can, I have my yearly bday update to post!


A Good Day

Been feeling like they’re few and far between these days.

Oddly, Tuesday was a good day. Nothing spectacular happened, I didn’t do anything particularly exciting or important.

I got lost in Danville, not really I just forgot where I was going so I guessed and guessed wrong. Then I placed something in my head, only to see my head was wrong and reality was a bit different. However, the actual intended destination was near where I thought it had been.

My oral surgeon had to pull out a stitch that wasn’t healing…hurt like a…I don’t know what, but it hurt.

Stent is still annoying the crap out of me. ALWAYS feel like I have to pee! And there started to be more blood today:( Today I get it out though! Can I tell you how NOT excited I am about the procedure?!?! It’s big and goes from my kidney, through my ureter to my bladder. I will be AWAKE while he puts the hook in to pull it out! But I am glad it’ll be gone.

Had class, am WAY behind and it’s going to take a lot of work to catch up with all my classwork.

At work we mop up the dog pee, if they’re inside. It’s Pine-Sol and water. After my shift I have to clean the pee bucket and refill it for the next shift. I splashed it all over my arm, hair, shirt and jeans. DOG PEE! ON my face!!! I was able to change the shirt after work, but didn’t have time to shower or find another pair of jeans and I’m 99.99999% certain I smelled a lot like a dog in class. After class, around 10:30 I was finally able to get in the shower.

Dogs are dirty, I know…and frankly really don’t care. We only wear work/casual clothes…jeans & old t-shirts/sweatshirts. But I can, without a doubt in my mind, tell you getting pee/pine-sol/water/dog hair splashed all over myself is not terribly enjoyable…funny, yes…gross, definitely. I think I may have wigged out if it got in my mouth, but so long as it stays out of me I’m good.

Monday night I was talking with Jess about forgetting diabetes stuff, I KNEW I would need to refill my pump at work Tuesday morning. I TOTALLY forgot my insulin! Thankfully it ran out towards the end of my shift and was able to go straight home, but waking to 312, dropping to around 90 at work and then popping right up to 344 was a bit exhausting.

Perhaps it was a good day because I was productive and actually tired. It’s a great feeling to be not only mentally in need of refreshment but physical too. There are so few opportunities for our society to be active in the workplace. Yeah, I hang out with dirty, slobbery, LOUD dogs all day…but I’m moving around, playing, cleaning. It’s not like I’m making a major (or any) contribution to society, but I’m making the dogs have a better day. Dogs are rarely as rude as people can be, they’re always grateful of your attention, they’re forgiving…and they take your mind off all the shit going on in the “real” world.

It’s hard to imagine anyone wanting to be a friend: I’m flaky and have to cancel last minute more times than I’d like, there’s CONSTANTLY something not right, hospital staff and pharmacies know me, I take meds that can mess with my ability to be completely with it, exhausted should be my middle name, eating out is beyond difficult, there’s always some conflict with my health and my family…I am starting to be more okay with this reality.
It’s my life, I can deal with it (most days)…but it’s really hard to “deal” with anybody else’s stuff too. I don’t say it to be selfish, honestly, just as a friend I’d like to be there for a friend as much as they are for me. Some days, that’s not a possibility. On the other side is that my life comes with a bunch of crap, most people have enough to deal with without me contributing anymore. I don’t mean petty drama or anything, but as a friend you care for your friends…when they’re having a hard time you want to be able to listen. A few friends understand and I love them for it. But there are others who get mad when I have to cancel, get pushed out of shape when I don’t respond quick enough, treat me like porcelain or think my limitations are just made up. If only they knew how much my limitations piss me off, I LOVE having a million things going on, tight schedules daily, etc but it’s just not me anymore. It’s okay I’m not, but it’d be nice to have other people on board, not to mention the poor responses make me feel worse about not being as capable.

Well that was a long rant in attempt to say, dogs don’t care what crap you have going on, they always like you. At one point on Tuesday I had 2 dogs on my lap, one between my feet, and two on each side trying to beat out the other for my attention. I definitely get tired of cleaning up poop and pee, breaking up rowdy dogs and hearing the deafening barking of some dogs…however, it can be incredibly therapeutic. It’s almost always chaotic, but a soothing chaos. Crazyness.

I’d love to have more good days, less sick ones. I think I cherish my good days more than I used to, it’s nice to feel like not such a disaster.


Take What You Can Get

I started a post on Feb 11th and never finished. It had a great title and everything: “The Dog Days are Over”. It was wrong, I think they’d only just begun.

February 11th I had two new pieces of information: (1) I was surprised with a new dog for my sister. A 10 month old Husky. Her name is Kaya and she’s every bit a puppy. (2) I FINALLY got a job! I was hired the same day we got the dog…and my new job is working with dogs. My official title is “Dog Handler” – I play with dogs, keep them well-behaved and end any fights. With the little dogs I end up cleaning poop, mopping pee my whole shift and with whatever time is left, I pet them. With the large dogs, I keep them from killing each other…not really, they just rile each other up and it’s my job to keep them settled…somewhat. They’re allowed to play, however, a lot of the dogs are right around Kaya’s age and get too excited. By the end of the three hours all the dogs are exhausted and most are stretched out on the floor.

So, there was going to be a whole blog about that…but now there’s more…

Did I mention my root canal finished? It failed. The tooth was pulled. I now have a lopsided mouth. It still bleeds from time to time, but the surgeon thinks it looks good so it’s not a problem.

Last Friday I made my first visit of the year to the ER. Thursday night around 9pm I started feeling pain in my right abdomen. By 11p I thought I was dying…perhaps a bit melodramatic, but I was in a LOT of pain. I tried going to the bathroom, but couldn’t and it didn’t really feel like Crohn’s pain, but I thought maybe. Then I tried a shower, didn’t work at all. Tried a heating pad, no luck there either. Finally I took some pain medication…which I don’t like to do because it tends to mess everything up with my Crohn’s. Then I was afraid to go to sleep because I didn’t want the pain medication to wear off and wake up in such searing pain. I had thought my doctor’s office opened at 7am so I planned to call then, turned out they opened at 8:30a, so I called the on-call doctor at 6:45a. She recommended I go to the ER, she felt it may be Crohn’s related and waiting to see the doctor, ordering the CT, getting the CT and seeing the results would take too long and it was a Friday after all.

So I told my parents where I was going and went on my merry way. There were three of us in the waiting room, I was the third…though I was called in first. (A bonus of having diabetes). The ER doctor felt I may need my appendix removed so he ordered a CT to find out. I survived my very first enema and did “well”…whatever that means. Turns out my appendix is just fine, for now. However, I had a number of kidney stones. They gave me more IV pain meds and sent me on my way. After a short spat with my mother regarding my ride home, I called my PCP’s office and asked for a referral to a Urologist. Then there was another short spat and a trip to the pharmacy…and then another pharmacy because no one carries PercoTAN anymore. My mother dropped me off at home with the THREE dogs and she and my sister left for the day.

Before they left Kaya of course got out because my sister needed to say goodbye to her 5 times and standing on the other side of the gate was unacceptable. Kaya then sprinted around the neighborhood. She finally came back and she was put in her crate. She screamed, cried and yelped…while I was trying to get the urologist to fit me in that afternoon.

I still couldn’t drive, my dad was coming home from work but was still an hour away and I had a friend I’d just canceled on…so I called her. The urologist could only fit me in if I could make it there by 2pm…which was 40mins away. I walked a half a mile down the street…in the pouring rain, met my friend on the corner, she dropped me off at the appointment and my dad met me there. Before leaving for the appointment my tooth started bleeding again. As my friend was driving I called the oral surgeon…he wanted to see me too. So I told him I could meet him at 3pm and explained the ER/doctor situation in a very abbreviated form.

Urologist showed me my CT, I had two large kidney stones and about 10 others in the right kidney and one in the left. He informed me I had a choice to have surgery done or not, but since I was at a higher risk of infection and already have inflammatory issues it was possible I’d need emergency surgery done. If I scheduled the surgery I could avoid another ER visit. …with my luck I thought it best to schedule the surgery. If I passed the stones over the weekend I could call Monday to cancel, otherwise Tuesday was the surgery.

Tuesday came, I had a morning appointment with my neurologist. That was lovely. I have another medication and “condition” or maybe he said “syndrome” but he told me it wasn’t technically a disease…essential tremors. The new med is Propranolol, a beta-blocker. Yay, just what I wanted! Another medication and another “condition”…I think I’ve had enough, thanks though.

Writing about this is depressing…I’ll be 25 in 13 days. It’s not time for my annual “yearly rundown”…but I’ve now had surgery, 2 in fact, am on more meds than I can usually remember, have three chronic conditions and two progressive conditions…2 more than I had last year….more doctor’s visits, more sleep, less life…I’ll shut up now…

So after the Neurologist appointment I went home, grabbed a few things and left for the hospital. I checked in at Noon, my surgery started around 3:30 and I left the hospital around 6:20p. My dad then took me to CVS to get the new medications and then we went home.

I’ve since spent the week peeing blood. I now know what it’s like to have an aching kidney. They put a stent in to prevent it swelling shut…thus the achy kidney. The pain lasted through Saturday. The pain medication has now screwed with Crohn’s and I’m in that kind of pain now…which pain meds will only make worse.

There is a med that is causing me to be really anxious before bed…I’m hoping it’s the pain meds and that’ll go away now that I’m not on them anymore. I’ve finished the antibiotic and the stop bleeding med…but didn’t take the flomax. I can’t really explain why, I think I’m just tired of having weird issues and weird medications and didn’t want to take a med intended for aging men with prostate issues. It’s a dumb excuse, but I think we all have a tipping point, and that was mine.

As a result of the hospital stay I now have three nasty bruises from the attempts at locating a vein for my IV. My sugars have gone batshit crazy…so it’s not just Crohn’s acting up. At least Crohn’s had the decency to wait til the surgery pain had subsided. We can’t always live in a perfect world, gotta take what you can get.


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